DLK post LASIK devastating......please help

I had my Lasik surgery last week on Oct 22. My eyes were -6 right eye and -4 left eye prior LaSik. My vision was 20/15 with contacts and corrected glasses. After surgery, day 1 I saw very blurry and hazy. O.D. diagnosed me with DLk and put me on oral steroids 40mg x4 days and prednisone every 2 hours. Today is day 6 and my eye vision is still hazy and blurry at distant. Has anyone here experienced dDLk? If so, how long did it take to resolve it and did you get 20 20 vision back ? I am so frustrated at this point since the outcome is worse than expected. 

Original Post

Many people who have LASIK develop DLK, also known as Sands of the Sahara. I did, but my surgeon refused to see me, and I was left with a scar on my right cornea before it finally resolved. Fortunately, your surgeon has treated you with the usual steroids, so once the DLK has fully resolved, if your distance vision is still not clear, you may find that you are over- or under-corrected. Is it in both eyes or just one?

You are still very early in the healing period, so your final outcome may turn out to be better than what you have now.

I wanted to see whether your vision has improved. I got diagnosed with Stage 2 DLK on the right eye on Postop Day 1 which evolved into its cousin CTK a few days later. Was put on oral steroids plus hourly drops until the inflammation stopped. My vision is very blurry and 20/30 right now. My doctor tells me it could take months but it will eventually heal. Very frustrating and scary to think about waiting that long. 

It has been 2 months and my vision does improve.  Initially post op my left eye was 20/30 and right eye was 20/70.  Today , left eye is around 20/25 and right eye is 20/40.  Still blurry at distant ...not as clear as pre-contact. MD said it will take 6 months for full resolution.  So I guess I have to be patient and see...Definitely I don't want to do a TOUCH UP (enhancement).

Artistwoman posted:

Many people who have LASIK develop DLK, also known as Sands of the Sahara. I did, but my surgeon refused to see me, and I was left with a scar on my right cornea before it finally resolved. Fortunately, your surgeon has treated you with the usual steroids, so once the DLK has fully resolved, if your distance vision is still not clear, you may find that you are over- or under-corrected. Is it in both eyes or just one?

You are still very early in the healing period, so your final outcome may turn out to be better than what yosu have"

Did your eyes get 20/20 after ? If so how long did it take to resolve/achieve 20/20 vision? Please share your experience. THanks 

Artistwoman posted:

Many people who have LASIK develop DLK, also known as Sands of the Sahara. I did, but my surgeon refused to see me, and I was left with a scar on my right cornea before it finally resolved. Fortunately, your surgeon has treated you with the usual steroids, so once the DLK has fully resolved, if your distance vision is still not clear, you may find that you are over- or under-corrected. Is it in both eyes or just one?

You are still very early in the healing period, so your final outcome may turn out to be better than what you have now.

Did your eyes get 20/20 after ? If so how long did it take to resolve/achieve 20/20 vision? Please share your experience. Thanks 

My vision never has returned to 20/20, but not because of the DLK. I had so many other issues that there is zero chance it will ever be clear. With scleral lenses I reached about 20/25, which was great, but my Rx keeps changing due to the other problems, so I no longer wear them. It took a long time to resolve, but had I been immediately treated, it might not have scarred or taken so long to do so. You are lucky you were treated right away, and it should resolve without much trouble.

Thank you both for the responses.

Tradesuperstocks -- do you happen to know whether you were Stage 2, Stage 3 or Stage 4 DLK? Did your doctor lift the flap to irrigate? 

Artistwoman -- I am very sorry to hear what you had to go through. I hope you can eventually get some stability in your vision. 

I am glad my doctor put me on both oral steroids and drops immediately, but I still wonder whether he should have performed a flap lift as well. He thought that was risky and unwarranted as I was still stage 2 at that point. But then my situation got worse and I was diagnosed with CTK two days later (some doctors believe Stage 4 DLK and CTK are the same thing, while others recognize them as two separate conditions).

I have read that CTK almost always clears (over 9-18 months) but DLK Stage 4 can cause some permanent damage. 

This is so difficult to deal with mentally. All these ups and downs...

 

 

 

Untreated, stage IV DLK often leaves a scar.

I should qualify my response above, however. I do now, after having had cataract surgery in 2012, have vision good enough to drive easily with glasses during the day. I wear reading glasses, but otherwise am often without glasses at all, even though I do have blur. I also have extremely dry eyes, which impacts how well I see at different times of day. I have had six Rx changes since my cataract surgery.

Overall, my vision is functional for most things except driving any distance at night. I'm an artist for a living—graphic designer and editor for more than four decades, and I design and make jewelry. With the right glasses, I'm able to easily do all of these things, even with a scar in the center of my right cornea.

I tell you all this because in time, things will improve and you will adapt. I know it's hard to imagine, but I seldom even think about my vision except when I want to go out in the evening and have to get a ride. Thank goodness for Uber and Lyft!

Please do let us know how you are doing from time to time.

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